ME/CFS

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A community for people with Myalgic Encephalomyelitis (ME), sometimes called Chronic Fatigue Syndrome (CFS). ME

Since Lemmy is small, this community also serves as a hub for common comorbidities of ME/CFS. Long COVID (Post COVID), POTS (Postural Orthostatic Tachycardia Syndrome), OI (orthostatic intolerance), MCAS (mast cell activation syndrome), and more!

For those who want an even more general community, check out [email protected]

Also please DM me I need to add some mods!

Rules: Instance Rules, No Ableism + No quackery or denialism. Empathy first, is a must to participate. No unsolicited advice.

founded 7 months ago

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Kreatin update (swg-empire.de)

submitted 2 weeks ago by [email protected] to c/[email protected]

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For all the two people interested in a Kreatin update. https://swg-empire.de/post/2801694

I think it actually helped me get a little bit better. I'm still bed ridden but I felt like I'm on a good trajectory. Friends and family also say that I seem to be a little bit more awake.

But it always made me pretty depressed about 1-2 hours after taking it. But much worse I started getting muscle cramps despite drinking lots of water. It got so bad that last night I feared that I wouldn't be able to sleep.

I'm going to stop taking it, look how I feel and then probably continue with a lower dose of 3 g per day.

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