this post was submitted on 25 May 2024
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[–] [email protected] 49 points 5 months ago (4 children)

I'd imagine they're mostly physically disabled people trying to get control of their limbs or access to the freedom this type of tech is promising. As abhorrent as all of the testing behind this tech is, if I were a quadrapalegic or something similar, I would volunteer because wtf else have I got going for me?

[–] [email protected] 20 points 5 months ago

That is very true. It doesn't mean it is ethical. It is quite common for people who are disabled, have a disease, or what not to be overly optimistic about success. Which caused them to be more willing to make poorly informed decisions.

Experiments like these are not inherently bad, but it is very easy to receive informed consent from the participant when they are not fully informed. That is why studies like this in academia require an ethics panel to review them.

To give an Elon musk's track record with his various companies. I think it is completely reasonable to question the ethics of this study.

[–] [email protected] 5 points 5 months ago (2 children)

It's not the tech itself that worries me. It's who in this case is supplying it along with the fact the previous patient had 85% of the functionality just stop and they haven't done a damn thing to address that before they want to try it on another patient.

There are other companies working on the same or similar tech that are far less fucked up.

[–] [email protected] 9 points 5 months ago

Arbaugh says that updates to the chip’s software have allowed him to regain many of the abilities that he previously had and that he is still very supportive of Neuralink and what it’s done for him.

They did try to fix the problem the best they could. Its also a very intense procedure so I doubt it's smart to go back after so little time. It's probably better to wait until they fix all the kinks anyways. The man did enough, he doesn't need to be a debug guinea pig with his head open every month imo.

I'd actually be mad if they used the same guy tbh.

I also think it's important to seperate the tech from the persona. There's a lot of smart people behind this and I think it's sci-fi as fuck.

[–] [email protected] 2 points 5 months ago

Look we all hate Elon and how neuralink is developing their tech that's not in question here.

People are taking issue with your referring to desperate people with very very poor quality of life due to injuries or medical conditions as "brain dead"

They aren't "brain dead", dumb or stupid, they are reaching for what looks like the only potential light in their life. A life that is probably impossibly difficult for any of us typically healthy people to imagine.

[–] [email protected] 4 points 5 months ago (1 children)

You would have a life and people who care about you, regardless of use of your legs.

[–] [email protected] 10 points 5 months ago (2 children)

I'm pretty sure not everyone has a life and people who cares about them.

[–] [email protected] -2 points 5 months ago

Then you are wrong.

[–] [email protected] 3 points 5 months ago

I mean...I'm more or less normally functioning. I'd give it a whirl then start building a drone army.

Fuck. We could have a real Rat King even!