this post was submitted on 07 Mar 2025
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I'm curious, what exactly are you worried about with your friend? Are the abnormalities you saw linked to a treatable disease?
Nope, not related to any disease I've ever seen. The best guess i have is fetal alcohol syndrome but it isn't a perfect match. It's just weird knowing he has a very odd shaped brain. And there's a lot of unknowns surrounding it.
What if he sees another doctor and they mention it to him? Would he be upset I didn't say anything? What if it is linked to some disease and I didn't tell him, and he gets sick?
What if it's hereditary and his kid has it, does it explain the motor delays? The premature birth? The problems they have with him sleeping?
Just a lot of unknowns.
Could you tell him just "you should have another MRI at a clinic"?
That rule does not seem very ethical to me, in any case.
In the US getting an MRI for "no reason" can be very expensive. Probably wouldn't have been covered by insurance.
Could you release the already captured images for him to take to a doctor for medical advice?
Personally, if I had something like that, that wasn't causing me problems and wasn't linked to future problems, I wouldn't want to know. Especially because of how unknown it is. It sounds like there's no way that information could be of use to anyone other than a researcher, so it actually seems right that you can't share it.
On the other hand, I'm glad your other friend got their sinus checked out.
You can tell him he should get a second mri that isn't bound by your rules.
$$$
Sure but then it's their call and resolves the if they find out issue.
It's not like you can just show up to the hospital and demand an MRI